Thursday 7 August 2014

OHSS - what they don't tell you and day 5 freeze report

So unfortunately I have got Ovarian Hyperstimulation Syndrome. It has made me quite ill and quite confused, as my symptoms were not what I expected. I mentioned the other day to my IVF nurse that I was still feeling pretty horrid, and had quite a bit of pain. I couldn't get to the clinic in time to see the doctor, and was told to go to hospital if I felt worse. That night I felt even worse, shakes, very hot, in pain and generally getting worse. To me it was the fact I kept feeling worse. So I went to Emergency. We were there until 4am. They ruled out anything major, but did a diagnosis of OHSS. They were able to speak with my specialist as well, and he was also able to give advice. The hospital were great, they gave me strong anti-nausea tablets, pain medication and put me on a slow drip. I know with OHSS you can't do heaps of fluid as it just pools in your body spaces. The gyno registrar saw me and allowed me to go home as long as I got checked at the IVF clinic. I went the next day and had my scan which showed very enlarged ovaries and some fluid in my spaces. I was told I do have OHSS.

What surprises me, is I just didn't expect my OHSS to be like this. The pain was bad, but mainly to the touch. My fluid retention was there, but not to the point I was expecting. What got me, was the fact I started to feel worse. And today I feel even worse (6 days after egg retrieval).  I think I have been waiting for the big signs - massive overnight weight gain, vomiting  (I do have terrible reflux, nausea but no actual over the toilet vomiting), diarrhoea etc. What I can say, is if you start to feel better (which I was) and then start to feel worse - don't leave it! Get checked out. Chances are you have mild/moderate OHSS, especially if like me you are at high risk.

I am a little disappointed with the freeze report. We have 14 embies make it to day 5, but only 4 were suitable for freezing. They may freeze some day 6 as well. As long as the embryo takes, 4 is heaps, I guess with everything that has happened, I just don't feel so positive right now. Hopefully some of you can make me feel better with this report!

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